Living in the world of science for some time has raised my awareness of what it means to live in the scientific method. Patterns emerge that I cannot easily ignore. In recent years, I have found myself captivated by the quantity (and quality) of scientific communications emerging from within YouTube.
Revisiting the Role of the Science Journalist
In today’s ecosystem of online science publications, it can be hard to tell what qualifies as journalism and what doesn’t. Does it matter?
For Erin Zimmerman, a plant molecular biologist turned freelance science writer living in Ontario, Canada, a recent plant science conference presented a rare opportunity to meet scientists working in the field and to gin up some story ideas.
Surveying College Students with SMS: Is it Feasible?
Text messages (also known as Short Message Service, or SMS) have become the go-to medium when contacting others. This is especially the case for today’s college students, who seem to conduct their social and even business lives completely via messaging service.
SoundRocket examined the data surrounding the efficacy of using SMS when surveying college students, resulting in presentation at a past American Association of Public Opinion Research (AAPOR) Conference.
Genomes2People Expands Partnership with SoundRocket to Improve Personal Genome Sequencing Outcomes
After about seven years with Soundrocket, the Genomes2People Research Program has re-upped and expanded the partnership with the help of a new NIH grant for its PeopleSeq Consortium study.
SoundRocket Collaboration Leads to Key Publication on Predispositional Genome Sequencing in Healthy Adults
An article just released today in Genome Medical, and available here to download in its entirety, reports on a groundbreaking study of over 650 individuals who have received whole genome sequencing as a predisposition screening tool.
Decoding FDA DTC Policy in the Genetic Testing Space: The Complete Series
Prefer to read all five posts about the recent FDA Pharmacogenetics Test Report activity at once? We have compiled the full week here into this one post…
Decoding FDA DTC Policy: Part 5 – Final Thoughts
Over the course of this week, we have covered a variety of related topics that arose from the recent FDA activity around direct-to-consumer (DTC) genetic testing. Because this is so new, much is yet unknown, so the best we can do today is speculate. However, we thought we would wrap up today with a few parting ideas to consider…
Decoding FDA DTC Policy: Part 4 – The Physician/Genetic Counselor Perspective
The National Society of Genetic Counselor’s position statement on DTC testing from 2015 states that consumers have the right to make an informed decision on DTC genetic testing. As with other DTC tests based on SNP array technology, it is important that companies offering these tests are very clear when discussing their limitations. For instance, the 23andMe Personal Genome Service…
Decoding FDA DTC Policy: Part 3 – The November 1 Warning Shots
One day following the Personal Genome Service Pharmacogenetic Reports (PGSPR) approval release, on Thursday, November 1, 2018, Jeffrey Shuren, M.D., J.D. (the Director of the FDA’s Center for Devices and Radiological Health), together with Janet Woodcock, M.D., (the Director of the FDA’s Center for Drug Evaluation and Research) published a statement to warn “consumers about genetic tests that claim to predict patient’s responses to specific medications.” This statement specifically calls out tests…